Investigators from the participating Institutions are responsible for the following:

  • IRB Approval from his/her institution
  • Obtain proper training in using the Rave Registry (Database) by Mayo Clinic
  • Obtain Material Transferee Agreement for DNA sample/data sharing
  • Follow the guideline for sample preparation, storage, and delivery
  • Obtain all available data from the DataSchema
  • Enter the data in the database
  • Maintain and manage their own dataset
  • Provide information on two staff members from research team for contact during emergency
  • Keep Contact with PIs through Conference Calls and Emails
  • Attend annual meeting of HCCEC for all update (personal or web)
  • Give regular feedback to the PIs